Show Notes

Jul 302 min read

Show Notes: 2.17 - Pediatric Hypermobility

This week's episode is all about pediatric hypermobility, the new pgHSD criteria, and how this affects our children.

Jul 92 min read

Show Notes: Episode 2.15 - Why Get Diagnosed?

Luna & Shelli discuss some important reasons why a formal diagnosis is worth the process of seeking it.

Jun 254 min read

Show Notes: Episode 2.14 - Hypermobile Dudes Part 3: The Conclusion

On this week's episode, Luna and Shelli wrap up their discussion with the Men's hEDS Panel.

Jun 122 min read

Show Notes: Episode 2.13 - Patient Advocacy & Insurance

We're back this week with the final segment of our interview with Megan Karonafil to dive deeper into her role as a patient advocate.

May 293 min read

Show Notes: Episode 2.12 - Hypermobile Dudes Part 2: An Interview Panel with Three Men with hEDS

Luna and Shelli continue their panel interview discussion on how Hypermobile Ehlers-Danlos Syndrome affects men.

May 223 min read

Show Notes: Episode 2.10 - Hypermobile Dudes Part 1: An Interview Panel with Three Men with hEDS

On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects men.

May 153 min read

Show Notes: Episode 2.09 - The Conversation With a Patient Advocate Continues

Welcome back to Part 2 of our interview with Megan Karanfil, where we discuss the role of a patient advocate and how they can help patients.