top of page



Show Notes: 2.17 - Pediatric Hypermobility
This week's episode is all about pediatric hypermobility, the new pgHSD criteria, and how this affects our children.

Tiffany
Jul 31, 20242 min read
17 views
0 comments


Show Notes: Episode 2.15 - Why Get Diagnosed?
Luna & Shelli discuss some important reasons why a formal diagnosis is worth the process of seeking it.

Tiffany
Jul 10, 20242 min read
41 views
0 comments


Show Notes: Episode 2.14 - Hypermobile Dudes Part 3: The Conclusion
On this week's episode, Luna and Shelli wrap up their discussion with the Men's hEDS Panel.

Tiffany
Jun 26, 20244 min read
26 views
0 comments


Show Notes: Episode 2.13 - Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karonafil to dive deeper into her role as a patient advocate.

Tiffany
Jun 12, 20242 min read
10 views
0 comments


Show Notes: Episode 2.12 - Hypermobile Dudes Part 2: An Interview Panel with Three Men with hEDS
Luna and Shelli continue their panel interview discussion on how Hypermobile Ehlers-Danlos Syndrome affects men.

Tiffany
May 29, 20243 min read
14 views
0 comments


Show Notes: Episode 2.10 - Hypermobile Dudes Part 1: An Interview Panel with Three Men with hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects men.

Tiffany
May 22, 20243 min read
9 views
0 comments


Show Notes: Episode 2.09 - The Conversation With a Patient Advocate Continues
Welcome back to Part 2 of our interview with Megan Karanfil, where we discuss the role of a patient advocate and how they can help patients.

Tiffany
May 15, 20243 min read
5 views
0 comments
2022 Year in Review of Zebra News
The Season Finale Thank you dear readers for listening to the first season of the Hacking Hypermobility podcast. The Bendy Mommas closed...
Luna L
Feb 2, 20235 min read
57 views
1 comment


Show Notes Episode 1.04
Diagnosis of Hypermobility / Ehlers-Danlos Syndromes, The Beighton Score Resources mentioned in this episode are listed and linked here....
Luna L
Oct 10, 20222 min read
118 views
0 comments


Show Notes Episode 1.02
Resources mentioned in this episode are listed and linked here. Your ‘homework’ is at the end of this list. In this episode we did a...
Luna L
Aug 19, 20222 min read
160 views
0 comments


The New Disability Publication on Connective Tissue Disorders
Here is our first Hypermobility Hack: Stay informed! In our premier episode of the Hacking Hypermobility Podcast, we discussed the...
Luna L
Aug 2, 20222 min read
108 views
0 comments
bottom of page