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Show Notes: Episode 3.11 - A Conversation With Movement Therapist Jeannie Di Bon
In this episode of the Hacking Hypermobility, Luna and Shelli chat with Jeannie Di Bon, a movement therapist and founder of The Zebra Club. They discuss the challenges faced by individuals with Ehlers-Danlos Syndrome (EDS) and hypermobility, including personal experiences with diagnosis, the importance of community support, and the Integral Movement Method (IMM) developed by Jeannie.

Tiffany
Jul 4, 20253 min read


Show Notes: 2.17 - Pediatric Hypermobility
This week's episode is all about pediatric hypermobility, the new pgHSD criteria, and how this affects our children.

Tiffany
Jul 30, 20242 min read


Show Notes: Episode 2.15 - Why Get Diagnosed?
Luna & Shelli discuss some important reasons why a formal diagnosis is worth the process of seeking it.

Tiffany
Jul 9, 20242 min read


Show Notes: Episode 2.14 - Hypermobile Dudes Part 3: The Conclusion
On this week's episode, Luna and Shelli wrap up their discussion with the Men's hEDS Panel.

Tiffany
Jun 25, 20244 min read


Show Notes: Episode 2.13 - Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karonafil to dive deeper into her role as a patient advocate.

Tiffany
Jun 12, 20242 min read


Show Notes: Episode 2.12 - Hypermobile Dudes Part 2: An Interview Panel with Three Men with hEDS
Luna and Shelli continue their panel interview discussion on how Hypermobile Ehlers-Danlos Syndrome affects men.

Tiffany
May 29, 20243 min read


Show Notes: Episode 2.10 - Hypermobile Dudes Part 1: An Interview Panel with Three Men with hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects men.

Tiffany
May 22, 20243 min read


Show Notes: Episode 2.09 - The Conversation With a Patient Advocate Continues
Welcome back to Part 2 of our interview with Megan Karanfil, where we discuss the role of a patient advocate and how they can help patients.

Tiffany
May 15, 20243 min read
2022 Year in Review of Zebra News
The Season Finale Thank you dear readers for listening to the first season of the Hacking Hypermobility podcast. The Bendy Mommas closed...
Luna L
Feb 2, 20235 min read


Show Notes Episode 1.04
Diagnosis of Hypermobility / Ehlers-Danlos Syndromes, The Beighton Score Resources mentioned in this episode are listed and linked here....
Luna L
Oct 10, 20222 min read


Show Notes Episode 1.02
Resources mentioned in this episode are listed and linked here. Your ‘homework’ is at the end of this list. In this episode we did a...
Luna L
Aug 19, 20222 min read


The New Disability Publication on Connective Tissue Disorders
Here is our first Hypermobility Hack: Stay informed! In our premier episode of the Hacking Hypermobility Podcast, we discussed the...
Luna L
Aug 2, 20222 min read
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