Show Notes: 2.17 - Pediatric Hypermobility
This week's episode is all about pediatric hypermobility, the new pgHSD criteria, and how this affects our children.
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Tiffany
Jul 92 min read
Show Notes: Episode 2.15 - Why Get Diagnosed?
Luna & Shelli discuss some important reasons why a formal diagnosis is worth the process of seeking it.
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Tiffany
Jun 254 min read
Show Notes: Episode 2.14 - Hypermobile Dudes Part 3: The Conclusion
On this week's episode, Luna and Shelli wrap up their discussion with the Men's hEDS Panel.
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Tiffany
Jun 122 min read
Show Notes: Episode 2.13 - Patient Advocacy & Insurance
We're back this week with the final segment of our interview with Megan Karonafil to dive deeper into her role as a patient advocate.
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Tiffany
May 293 min read
Show Notes: Episode 2.12 - Hypermobile Dudes Part 2: An Interview Panel with Three Men with hEDS
Luna and Shelli continue their panel interview discussion on how Hypermobile Ehlers-Danlos Syndrome affects men.
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Tiffany
May 223 min read
Show Notes: Episode 2.10 - Hypermobile Dudes Part 1: An Interview Panel with Three Men with hEDS
On this week's episode, Luna and Shelli discuss how Hypermobile Ehlers-Danlos Syndrome affects men.
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Tiffany
May 153 min read
Show Notes: Episode 2.09 - The Conversation With a Patient Advocate Continues
Welcome back to Part 2 of our interview with Megan Karanfil, where we discuss the role of a patient advocate and how they can help patients.
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Luna L
Feb 2, 20235 min read
2022 Year in Review of Zebra News
The Season Finale Thank you dear readers for listening to the first season of the Hacking Hypermobility podcast. The Bendy Mommas closed...
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Luna L
Oct 10, 20222 min read
Show Notes Episode 1.04
Diagnosis of Hypermobility / Ehlers-Danlos Syndromes, The Beighton Score Resources mentioned in this episode are listed and linked here....
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Luna L
Aug 19, 20222 min read
Show Notes Episode 1.02
Resources mentioned in this episode are listed and linked here. Your ‘homework’ is at the end of this list. In this episode we did a...
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Luna L
Aug 2, 20222 min read
The New Disability Publication on Connective Tissue Disorders
Here is our first Hypermobility Hack: Stay informed! In our premier episode of the Hacking Hypermobility Podcast, we discussed the...
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