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Show Notes: Episode 2.15 - Why Get Diagnosed?

Updated: Jul 11

Original Air Date: July 10, 2024


The Bendy Mommas discuss why we think it’s a smart idea to use your spoons to get diagnosed. We discuss the benefits of the diagnostic journey to have the symptoms of hypermobility evaluated s if you suspect an inherited connective disorder such as the Ehlers-Danlos Syndromes. 


If you have any questions or comments for future episodes, please send us a message (voice, audio, or video) at info@hackinghypermobilitty.com. Be sure to give us permission to use your likeness and if you want us to use your name or not.


Co-Hosts: Luna and Shelli


Disclaimer: The information provided in this podcast episode is for educational purposes only and should not be considered as medical advice. Consult with healthcare professionals for personalized guidance on managing Ehlers-Danlos Syndromes. 


Important Takeaways:

  • A proper & timely diagnosis is essential to improving your overall health and quality of life and YOU deserve that!

  • Some of the benefits include proper health management, avoiding unnecessary and costly tests, and better mental health.


Links to Resources and Topics Mentioned In This Episode


Resources & References





Regulate – A parent’s guide to emotional dysregulation with Dr. James Kustow https://www.youtube.com/watch?v=3HQ1_POPh6U



Global Learning Conference – EDS and HSD From Head to Toe: https://www.ehlers-danlos.com/events/2024-global-learning-conference/



Management of childbearing with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders: A scoping review and expert co-creation of evidence-based clinical guidelines https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0302401


Previous Episodes Mentioned


Thank you so much for joining us this week. If you haven't already, please remember to work your magic (Like, Follow, Share, Subscribe, leave a Review) on whichever platform you're joining us on; it truly helps more people find us and it's an easy (and free!) way to help support the podcast.


You can now also support the show by making a one-time donation here, or a monthly contribution through Spotify! Simply go to our show's Spotify page and click "Support This Podcast". Your support will help us reach our goals to improve our recording quality and make other improvements to the podcast.


Every bit helps, and we appreciate your support, follows, ratings, and shares so much! Thank you, Bendy Baddies!


Next week we'll be celebrating our 2 Year Podcast-aversary in Philadelphia at the 2024 Global Learning Conference! If you're going to be there, be sure to let us know, we'd love to say hi. Come back next week, we'll be releasing Part 2 of 'Why Get Diagnosed' a week early as part of our birthday celebration week!


Wishing you happy, healthy hypermobility,


-Tiffany | Assistant Producer

Feel free to email to me with any questions!





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